Tuesday, April 5, 2011


Last week some major milestones happened. On Saturday I biked 50 miles!!! Would have never thought I would be able to do that. I would have never thought that I would be healthy enough to bike that far and that hard, and unless Lance Armstrong is telling you he did it, biking 50 miles is pretty hard to do. The total miles for this week were over 120 miles!!!

Earlier this week I also had a MAJOR spill on my bike and I think I cracked the top layer of my sternum. They doctors are not sure what is going on with it and have done numerous tests, but the bottom is still held together, but there is definitely a hole in my sternum going the length.
I had my first 3 month follow up with the heart transplant clinic; this is the first time I have been able to stay away from them for more than a month! I have always felt sick in a month and felt that uh-oh feeling that I just needed a checkup, but this quarter I told myself there was no way I was going to go in with in the three months, and I made it! And I got a 23 (on a scoring range of 0-34, but anything under a 34 is good) on my Allomap, this is the lowest that I have ever gotten!
Natalie a lung transplant patient and transplant buddy passed away this Tuesday afternoon. She was 33 years old and was an amazing person. She graduated from college while undergoing chemo for non-Hodgkin’s lymphoma, the effects of the treatment ultimately cost her, her lungs and then her life, but she always lived her life to the fullest and was such a sweet girl and was one of my first recipient friends I made at the donor network while we volunteering at many events.
Even since my many notes that I wrote to my donor family in December I have been meaning to write again and just get an update. When I came into the clinic my social worker gave me a note from my donor’s family! It had a picture of my donor, Ruben, his older daughter (who is 9 years old and the mother of his children) (he also has a 2 year old daughter) and another picture with his mother and his 2 brothers and 3 sisters. I also found out Ruben was 36 years old when he passed. It was somewhat hard to get the letter because without the letter I could always think of him as a single being (without a family, children, etc.) but now that I see that he a regular person and I could relate being a donor to someone I know, which is a great but scary gift. Rubens final resting place is in Colima, Mexico where his parents live. His sister (who was his next of kin) is still in Fresno, and she would like to meet with me but I am not sure about his daughters or other family members.

1 comment:

  1. Wow Allie! I am impressed! 50 miles is a looooong way! Sorry to hear about the spill. I hope that it isn't too painful and you recover from it well. I'm happy to hear about your numbers being good and any quarter without doctors is a good one! Mackenzie has her biopsy a week from today. We are hoping for another zero so we can stretch out the time between biopsies a bit more.
    Its good that you heard from your donor family. We never heard from ours, but I plan to write another letter to them so they know they are in our thoughts and prayers. I'm sure its hard to know, but it also must be at least somewhat good to know about your donor.
    I am sorry to hear about your transplant buddy. It seems like the past four weeks has been rough on a lot of the lists I am on. Its sometimes hard to deal with. But, I'm glad she had you as a buddy during the past months.
    Hope things continue to go well health-wise!