Wednesday, August 25, 2010
about is a picture of my baby cricket, whom I missed when I was away from her (while I was in the hospital from October-January). I took the pic to send with my bio for a ctdn thing and for the trio youth group. She is a Siberian Crickadoddle (or a Pappillon)
So, I have had extreme nausea for quite awhile now, and I had a biopsy Tuesday and got the results today. Last week I lost 10 lbs in 1 week for not eating ( I have Kix for breakfast, no lunch, and no dinner, and maybe a snack with night meds like 5-10 small pretzels). I thought I was definitely rejecting, and I was almost hoping I was-so I could take massive doses of Prednisone and end the nausea, but no, I got the results today and it was just a 1r/1a, so my medications don't get changed. (The scale ranges from 0 (no evidence of rejection to 3 which is bad rejection). So tomorrow I am going to a gastroenterologist to see if they will scope my stomach to see if I have an ulcer or infection, but this is just a consultation, so I don't know when or if I will actually get this test.
I just can't wait to be fully recovered from the tx. This is one of the frustrating things of the tx, no one knows what is wrong and I just want to be normal, feeling well, and in school and working! I don't think I have ever wanted to go to work or school (or ever will) was much as I do now! But my mind is still on another planet and I can't remember anything.
But I am still thankful for this whole process, it has taught me so much and has slowed down my life from what it was-I was totally all over the place (working on more than one Bachelors degree at two different schools, volunteering, and working over 25 hours a week). As I like to joke-it has given me the gift of time-time off from the craziness of my normal life.
I have been trying to think of/do things to maximize my time that I have off. One of the things I am doing is (trying) to learn Spanish, volunteering as much as I can with transplant related things (I would like to work in the transplant field), lately I have been thinking about collecting data for a project I know I will have in nursing school that I could base around transplants.
So, in December I was asked-kind of pushed into speak at a religious women's event and I just don't know what I am going to talk about or how I am going to do this speech at all. Almost everything I have done for CTDN I have almost winged it, and I joke with my mom and grandmother that I am going to wing it, but I honestly don't really know how I am going to deliver the speech. Usually I am somewhat funny, and I really have to be serious-which I am not. And then my mom says I can't make it sad-which would be the next thing to do, so I guess I will deliver a boring speech? Hahah, like I said, I think it will go best if I "wing it"