Showing posts with label arthritis. Show all posts
Showing posts with label arthritis. Show all posts

Sunday, January 9, 2011

This is the stuff they don't tell you about

02/08/2011 This is the stuff they don't tell you about!
So I was watching this cheezy movie about heart transplant patients; yes I must watch and read all books about heart transplants, fiction or non-fiction to either learn more or to see how close they really capture what it is like to have a heart transplant.
After one of the characters got their heart transplant, they were speaking to a fellow heart transplantee about just how great they felt-"You know, the stuff they don't tell you about". I have been thinking about writing this for an hour now, and now I can't put it into words, but after my great night I can totally relate to this character.
The stuff that they did not tell me about was how all the sudden I would be more out going and willing to try more things. I have done more things with friends, gone out with friends of friends, and tonight I went to a friends work party as her "date". I think in a way the transplant has given me some sort of confidence because I would have never done these things before.
The night was amazing! I got to meet some really cool people, a Chief or Surgery for UCSF, SF Judge, and many Lawyers, and some guy tried to pick up on me-this was the first time since transplant (I inadvertently covered my scar with a scarf-people ALWAYS stare at my scare when I talk to them- so I don't know if that made me more approachable). but I turned him down-he smoked and had a tattoo on his neck :(. I am so glad I went, it was just such a cool adventure.
Today was Katies winter ball and I woke up early (10 am) and ran out to the craft store and bought peacock feathers and made her a headpiece. I think it actually looks really cool and really good. It really got my creative juices flowing in another way. I love how lately I have been back into doing art-for fun. I get inspirations from watching movies or just looking at materials I think of something amazing I would like to make.
I love Katies dress that we picked out about 5 days before the dance. I will have to post pictures later. Last year she was very formal, this year she was very fun.
I got to do her hair fun, and touch-up her highlights which turned out amazing looking-he hair was looking to blond.
And finally, Jackie always does her make-up, but she is away, so she asked me to do it. And I though I could do a fine job, but that it would just look like everyday make-up since that is the sort of make-up that I do, but then my creative juices started flowing and I blended the colors of her eye shadows to make it look like a peacock-to keep with the theme. Even my grandmother and mom liked it! Their only complaint-and my grandfather was very pissed about this was that the dress was pretty short-but you gotta have fun!
So we both had a great night! This is what the doctors don't tell you about!

Friday, June 4, 2010

Again, I totally meant to write about something else, but this popped into my head instead!-No one likes to be rejected


So, after reading another transplant blogger's blog, I planned on writing about something more transplant related, but right before I started writing I did my devotion and read June 3rd in "My Utmost for His Highest". (FYI:this is also a really good book, especially if you mean to do devotionals but never fit it into your life, the author packs a lot of though provoking stuff into 1 small page a day that takes about 5 minutes to read).
Anyways, in the car I was just thinking about how happy I was that I took this road trip with Jackie and Jen. Not only would it strengthen my relationship with Jackie, make it easier for her to move away, but it would also let me grow and get experiences.
The Grans Canyon was never on my list of things to do in life, like I never really cared if I got to see it or not. But yesterday, when we pulled up to it, I almost started crying just for the sheer fact that I had made it to the Grand Canyon and I was getting to see it. It was beautiful. For some reason, a lot of times, when I see something amazing in nature I pray, it strengthens my beliefs, I thank God for making it. I stand in awe.
Todays chapter in My Utmost was about thanking God and Joy. A real friend will not just tell you their sorrows, but also joys. Do we tell God our joys enough, and do we let God speak to us and tell us his joys. This just really hit close to me. Until this trip and seeing America I have never really just let God talk to me, I have done all of the talking. I think through seeing everything it was God showing me his joys and being the un-natury that I am, would have never cared about a place like the Grand Canyon or Sedona Arizona, but God was opening my heart and showing me his joys.
Anyways, I hope tomorrow I write about the blog post I origionally meant to write about because it was really good.
In health news: I am down to 10 mg of prednisone after my 2nd bout of rejection. I don't have to go back to Tx until mid-July (the team knew I was going on vacations and was so nice to let me go-I love them). I am feeling ok. I am just so paranoid about rejecting again. What happens if I reject again. The good news is when I reject my heart does not usually have any damage-so could I just forever reject. I don't feel amazing when I am rejecting-but still am better than before transplant.
Also, for some reason my lower back is killing me! I took an Oxy today (which I usually take at night) and it made me sick! But for some reason ice cream settels my stomach-which I LOVE (but don't want to gain any weight :( ). The Dr. did all of these tests and all they found was that I had normal wear and tear and arthritis in my lower back, is it normal for a 22 year old to have arthritis? Becuase of this, I am so blessed to have a great sister and sester (Jackie and Jen) they do a lot for me. So far every night they have carried in all the stuff from the car for me becuase my back hurts. They are the best.