Showing posts with label astelles ride of a life time. Show all posts
Showing posts with label astelles ride of a life time. Show all posts

Sunday, September 19, 2010

A turly inspiring person


So normally I would not write about fellow heart transplant patients 2 posts in a row, but these two ladies just struck me. This lady I am going to introduce you to is so inspiring. She won this years essay contest for the Ride of a Lifetime contest, after you read her story I will explain why she touched me so much!






Jennifer Shih
Atlanta, GA
Heart Transplant Recipient

The phrase “the best laid plans of mice and men often go awry” from Robert Burns is very fitting for transplant patients. I was a Pediatric Cardiologist fellow 5 years ago when my plans went awry. I had just finished 20 years of schooling, and 3 years of pediatric residency to fulfill my dream of becoming a pediatric cardiologist at Cincinnati Children’s Hospital, a very long-term plan. While on call one night, I felt a little tired and a was a little short of breath after climbing a flight of stairs to my office, so I decided to perform an echocardiogram, an ultrasound examination of the heart, on myself. I found unexpected fluid around my heart, which was strange since I had never been sick in my life. In fact, I was the perfect doctor because I rarely seemed to catch illnesses from my patients.

Because of the fluid in my heart, I decided to take myself to the ER. It was a good thing that I did because I went into cardiac arrest 6 hours after I performed the echocardiogram on myself. At that point, I underwent emergent treatment and a med-flight to the Cleveland Clinic. Upon arriving there, I arrested a few more times and my heart could not be shocked into working order again. To save my life, I was brought to the operating room to have a BiVAD placed to keep me alive until a lifesaving heart could be found to transplant. Since I essentially did not have a heart anymore, I lived in the ICU until I heard the news a heart had been found for me. It had been about a week since the time I was completely normal to finding out I would die without a heart transplant.

After my lifesaving transplant, I recovered for 3 months in the hospital and 2 years on disability. I wasn’t able to practice pediatric cardiology anymore due to the activity and risk of infection exposure. In that time I started the Have a Heart Benefit Fund with my friends. We raise between $10,000 and $20,000 each year to help fund transplant patient care, education, and research. I have always loved helping people and this has been a great way to show my gratitude to donor families as well.

I now have my heart transplant care followed at Emory in Atlanta, have gotten married, and work as a pediatrician in the neonatology department at Emory, while running the benefit. My transplant has made me a more empathetic doctor, since I can truly understand what it feels like to be a patient. It has also made me live life to the fullest even more than before and not take any of my relationships with family and friends for granted. I am forever grateful to those who give the Gift of Life.

Jennifer inspires me so much for so many reasons. She literally went as far as she could go as a pediatric resident and now is a neonatologist. When I started getting ill a lot and had to be around a lot of bad doctors, I decided that one day I would like to be a doctor and my long-term goal is to be a doctor, but I never though that would be a possibility since being a doctor is physically demanding. Reading Jennifers story just kind of made me realize it could still be a possibility. I have had my hopes set of pediatric cardiology, but in the last few months I had been thinking neonatology because the babies are so small I can physically handle them and they are less likely to be infectious.
She inspired me that she took the time off of work that she needed, she went back to work as a Dr. (she did not just get married and "quit" as a lot of young women do, while she was recuperating she volunteered, and she is giving back).
Her story just gives me a better picture of the future of my tx!

Friday, June 25, 2010

Astelles-Ride of a Lifetime


I entered the contest for the Astelles "Ride of a Lifetime" essay contest. I don't really know why, I haven't watched the parade since I was little, but all the other people with heart, liver, and kidney transplants were doing it, so I did it. It is so hard to cut your story into 500 words, but here is my story-or the 500 word jist of it.


Since I got my transplant in November of 2009, my life, and my whole families lives have changed-all for the better. I had been sick since I was little with heart problems, but things started to go downhill when I was 15 years old and I got a pacemaker. At the time I was having a lot of doctors appointments, I was constantly tired, and could not physically or mentally keep up with the other students. My parents and I felt my best options was to attend a special independent study program, the program allowed me to work school around my health and my schedule.
In 2009, my health really started to deteriorate again. I was getting to the point where I could barely walk to class (I was now attending Holy Names University) or do anything on my own. I was even getting too tired to drive. In October my Cardiologists listed me for a heart transplant as a status 1b and I stayed in the hospital, an hour away from my home for almost 3 weeks on IV medications. The IV medications made me feel better, but I still could not do very much. Finally the doctors decided I could go home and 3 days after being home I was called for a transplant.
Immediately when I woke up, only a few hours after surgery, I felt better-my heart function felt better than since I was a little kid. I felt like I could run a marathon, then and there. When I moved to the step-down unit, the nurses were joking that I could go down to the cafeteria and get my own food since I was walking so much, and so fast.
While I was still in the hospital a nurse told me about volunteering with the local OPO and signed up while I was still in the hospital. Since I have gotten out of the hospital I have volunteered for the CTDN, talking to nursing students, hospital staff, and such about organ donation and the impact it has had on my life. I have been accepted into a nursing program at Samuel Merritt University, and hope to one day be a transplant nurse. I know I will make an excellent transplant nurse because I have been in the position of the patient, not only do I know the odd medications well, but I know side effects, and all the other things that go along with having a transplant and taking all this medication. I also have a 3.8 gpa. Before transplant I was a hair stylist and carried around a my business card, now I carry around information for people to sign up to be an organ donor.
I was worried that I was making the wrong decision to get a transplant, I though my quality of life would be not as good, but it is so much better-I feel better than when I was 5 years old. When people see me, they can’t believe I had a transplant. I think I am showing people that you can thrive after having a transplant.


Good luck to everyone who entered!